Last year was a crazy year filled with two jobs, looking after my health and of course having a social life. By the end of the year I was exhausted and needed a rest. I think i even wrote a blog post about my lazy two weeks. It was bliss but when I returned to work it took some time for my body to get back into gear.
When I finally got my body back in order I then went off to New York City where I spent two and a half weeks zipping around in my rental scooter. I did some walking but the majority of my trip was spent on a very comfortable scooter seat.
Once I returned from my big adventure in NYC I went straight back to work and then took a week off before I started my new role. My body used that week to crash and reboot.
Since then I have returned to gym three days a week. I have been focusing on my balance, my core strength and getting up from a seated position without using my hands too much. I have amazing upper body strength but my lower half needs a lot of work.
Having spent the last month and a half back in my routine I thought it would be a good idea to have a check-up with my neuro-physio. I wanted to make sure that my hard work was paying off and that I wasn’t deteriorating.
Walking into her room is always a treat because I know she is watching me and assessing my movements. I was extra aware of her this time around and I didn’t want to let her down.
After an hour of my physio prodding me and having me sit and stand over and over I got the news. My movements were smoother than last year and my balance had improved. Of course I still have room to improve and Scarlett isn’t going anywhere but I haven’t deteriorated.
Familial Dysautonomia is degenerative. This is something I live with every day. So when my neuro physio tells me that I have improved I can’t help but be in shock. If I keep at it I hope to maintain the ability that I have for as long as I can.
I’m thankful to my parents and my trainer Carl. They push me to keep on going and look after my health. I may be a very determined person but if I didn’t have that support behind me I don’t think I would be the way I am today.