You’re not alone

I have days where I spend hours on my own. I could be watching the latest season of Veep or Game of Thrones. I could be colouring in pictures – my new hobby. I could be reading a book – anything from a trashy novel to an autobiography. Whatever I could be doing I would be on my own for hours without talking to anyone.  

Usually when I do this I am ok. I might break up the activity by doing the laundry or checking out facebook and  by doing these things I’m usually ok.

The reason why I do it is because I need to rest after a long week at work or after a busy Saturday. I rest so I can recharge my batteries for the next day. However, sometimes when I do this I’m not ok. Spending a lot of time on my own I can end up thinking about dark things – things that I don’t really want to share on here but it can make me sad. 
 My sadness can disappear pretty quickly because I can put on a song and it will make me smile and after singing a long to the music I can move on. Or sometimes I will think about a happy experience or a good friend and I will realise that everything will be ok because I’m not alone.

 I am very lucky that I can get out of these moods. I am lucky that I can distract myself.

However there are some people who reach a point where there’s no way out. They can’t see the light at the end of the tunnel and they think they don’t have anyone to talk to.
I’ve realised over the last few months that there is always someone out there for you. It may be the person sitting next to you at work, or the barista who has served you coffee for the last few years. It could be your neighbour who yells out hello when they see you. It could also be your dentist. Of course they can’t solve all your problems but they can possibly cheer you up and give you that motivation to keep on going and get help.
Talk to someone – let it out because while it’s helping you it may just also help them too. 
Please take care of yourselves and know there’s help out there. 
Today is R U Ok? Day. It’s a day to take the time out to ask your friends, family members, co-workers, or even your neighbour how they are doing. Give it a shot – you never know what kind of a difference you can make.


Faking it – Life before my Acquired Brain Injury

Today is the start of Brain Injury Awareness Week.

Ann Hutchinson has decided to share her story of what it is like living with an Acquired Brain Injury. Her story has been broken up into three pieces which will be shared throughout the week. You can read the first section here

Feel free to share it with your friends and family – it is a great read!

Time to celebrate!

Last year was a crazy year filled with two jobs, looking after my health and of course having a social life. By the end of the year I was exhausted and needed a rest. I think i even wrote a blog post about my lazy two weeks. It was bliss but when I returned to work it took some time for my body to get back into gear.

When I finally got my body back in order I then went off to New York City where I spent two and a half weeks zipping around in my rental scooter. I did some walking but the majority of my trip was spent on a very comfortable scooter seat.

Once I returned from my big adventure in NYC I went straight back to work and then took a week off before I started my new role. My body used that week to crash and reboot.

Since then I have returned to gym three days a week. I have been focusing on my balance, my core strength and getting up from a seated position without using my hands too much. I have amazing upper body strength but my lower half needs a lot of work.

Having spent the last month and a half back in my routine I thought it would be a good idea to have a check-up with my neuro-physio. I wanted to make sure that my hard work was paying off and that I wasn’t deteriorating.

Walking into her room is always a treat because I know she is watching me and assessing my movements. I was extra aware of her this time around and I didn’t want to let her down.

After an hour of my physio prodding me and having me sit and stand over and over I got the news. My movements were smoother than last year and my balance had improved. Of course I still have room to improve and Scarlett isn’t going anywhere but I haven’t deteriorated.

Familial Dysautonomia is degenerative. This is something I live with every day. So when my neuro physio tells me that I have improved I can’t help but be in shock. If I keep at it I hope to maintain the ability that I have for as long as I can.

I’m thankful to my parents and my trainer Carl. They push me to keep on going and look after my health. I may be a very determined person but if I didn’t have that support behind me I don’t think I would be the way I am today.

Thoughts of a Frustrated Visionary

Through my work I stumbled upon a bog written by Todd Winther, who was born with CP. His blog focuses on a range of topics – politics, movies, music, relationships and of course disability. While reading it today, I came across a paragraph that made me breathless. Someone who feels the same way as me! Here is the paragraph:

“When I hear my parents tell the story of my diagnosis it always makes me emotional, hearing the pain that my parents went through, and the despair they must have felt. It has nothing to do with me, it’s like they are talking about a different person. Hearing the story once more made me so overcome with emotion that I couldn’t finish telling my own story. I started to break down and cry. It made me realise that I will never be comfortable with my disability, but I’ve reached a point that my feelings on my disability are as good as they are going to get”

Let me know what you think…

To read more, go to:

Sex and Disability: breaking the taboo

“Whatever you do, don’t give up. Just because you are living with a disability, you shouldn’t have to give up sex” – Samantha Evans

Here is an article about disability and sexuality. People with disability have sexual desires, just like able-bodied people. They face similar barriers to others, such as self-confidence, self-esteem, overcoming physical and mental aspects of having sex and finding a partner. Samantha explores ways to overcome these barriers.

You can find the article here: